SUM LOMBARDO – Two years ago a fundraiser began to help little Selene to fight against a degenerative disease. A story that reached the Alpini of Somma Lombardo, who rolled up their sleeves and organized a series of initiatives and dinners to contribute to the solidarity campaign. Today as then, the black pens of the “Angelo De March” (which this year marks 90 years since the group was founded) they raise one huge barbecue and a beach volleyball tournament with the aim of donating part of the proceeds to little Selene’s cause.
Barbecue, music and sport
The appointment is for the weekend of July 13th and 14that the party area of Casorate Sempione. With an event dedicated to good food, sport and music. But without forgetting the main objective. Expected a food stand and a huge barbecueon Saturdays from 7pm to 11pm and on Sundays from 12pm to 2pm and from 7pm to 11pm. With the possibility of using the take-away service and the bar.
Space for sport, with the organization of two beach volleyball tournaments by title “Let’s play for Selene“. A portion of the proceeds will be donated to support research for Rett syndrome, the degenerative disease that affected little Selene. On Saturday it will be a two against two dedicated to the female under 14s, on Sunday a four against four for the mixed open category.
At the end of the two evenings, there will be live music: on Saturday with Rudy Neri’s DJ set from Delta International radio, on Sunday with the Hot Box group.
Selene’s fight
Selene’s story was made known by her mother, Eleonora Costantino, on the crowdfunding page. The last update on the little girl’s fight dates back to the end of May. With thanks to those who have supported the cause so far («you never make us feel alone, you remind us that everything is possible and you help us realize our little daily miracles.” Even though “there is still no cure” for the disease. Despite the difficulties, thanks to the support received «we had the opportunity to undertake many paths, many therapies, which are making a difference nowadays.” It’s still: “Selene can carry out many therapies privately (psychomotricity, physiotherapy, osteopathy, frequency medicine treatments in Switzerland and beyond, she is followed by nutrition experts because she has a damaged intestine and thanks to correct nutrition she improves and the epileptic seizures caused by her syndrome do not appear) because the healthcare system only provides us with two psychomotor sessions per week 40 minutes each. But it’s too little: must be stimulated every day because his disease is progressive. He must constantly train his body and his mind.” In short, “every single euro you donate to us, know that it makes a difference».
