«Yesterday afternoon, the 10-month-old Palestinian child suffering from SMA (spinal muscular atrophy) type 1, who we welcomed in Puglia to ensure the best care, underwent the infusion of gene therapy at the ‘Giovanni XXIII’ hospital. ‘ of Bari and will remain under close clinical monitoring for the next 90 days». This was made known by the president of the Puglia Region, Michele Emiliano.
«Therapy – he continues – was administered by the pediatric neurologist who took care of the patient when he arrived in Bari with his parents on March 28th. If the little boy had remained in Ramallah, now without the therapy he was following, the neurodegenerative disease would have left him with no hope of life. Thanks to an institutional collaboration between the Puglia Region and the Government, in the person of the undersecretary to the Presidency of the Council of Ministers, it was possible to accept the appeal of the Sma Families Association and welcome it into Italy».
“We are happy – adds the general director of the university hospital ‘Policlinico di Bari‘, «for having offered a new chance of life to this child who was denied timely and adequate care by the war. Thanks also go to doctors and healthcare workers for the commitment, professionalism and humanity demonstrated in this case too.”
