The singer, suffering from a rare neurological disorder, reveals that there is little that can be done. “I can’t heal”
Céline Dion returns to talk about her illness, which forced her to temporarily leave the stage. The singer, suffering from a rare neurological disorder known as “stiff person syndrome”, talks to Vogue France. And she admits: «The disease will stay with me forever. I hope for a miracle” – photo | video
The discovery of the rare disorder that prevents her from moving – Look
THE ILLNESS – His is a long outburst, but also an awareness of a situation against which it is currently impossible to fight: «I’m fine, but there is a lot of work to do. I have not defeated the disease, it is still with me and always will be. I hope for a miracle, that a cure is found through scientific research, but for the moment I have to learn to live with it. So this is me, I’m a woman with stiff person syndrome. Five days a week I undergo athletic, physical and vocal therapy. I work on my toes, my knees, my calves, my fingers, my knees, my singing, my voice…. I have to learn to live with the disease and stop asking questions. At first I asked myself: why me? Why did this happen? It’s my fault? Life doesn’t give you any answers… The way I see it, I have two choices: either I train like an athlete and work hard, or I shut down and everything is over. I stay at home, listen to my songs, stand in front of the mirror and sing to myself. I decided to work with my whole body and soul, from head to toe… I want to be the best I can be. My goal is to go back to see the Eiffel Tower.”
Celine Dion cancels her European tour dates – Look
ONE DAY AT A TIME – He can’t say when he will return to the stage. For four of her 55 years she has been fighting the disease: «For four years I said to myself: I won’t come back, then I’m ready, then I’m not ready… My body will tell me. But, on the other hand, I don’t want to just wait. Morally it is difficult to live day by day.” However, going back in time, she claims not to have known what normality was: «What is normal? Being on the school stage is sharing with the world, it’s exciting, it’s a way of expressing yourself. It’s a different kind of school. I didn’t have any friends? Did I miss something? I’ve never had time for those things, so I can’t compare. What if I have any regrets? I don’t know and I don’t care, because the stage, my family, my children and my songs have taught me everything I know.” And she explains the secret of success: «You need good songs, the right time, the right team. If something is missing, it doesn’t happen. It’s not just a matter of music or voice, but also of determination, desire and the inner vibration… Celebrity taught me to never give up on anything. Fame hasn’t taken anything away from me, because every day I move forward.”
We can’t find cures for Celine’s illness, says sister Claudette – Look
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