5/17/2024 – In Italy approximately 30 thousand minors, children and young people aged 0-17, require Pediatric Palliative Care (CPP), but only 18% can take advantage of them as there is still a considerable delay in their widespread and correct application throughout the national territory.
For raise awareness Il was born on the theme Tour of Italy of Pediatric Palliative Care (GCPP). The initiative stops in Reggio Emilia Sunday 19 May at the Chiostro della Ghiara, with speeches, readings, games, snacks, mods and info points from 3pm to 7pm.
Launched a few years ago by Maruzza Foundation, the event aims to promote the development of regional networks. The 2024 edition started on May 11th and will end on June 16th.
The main objective of the GCPP is to promote a shared culture of pediatric palliative care, disseminating accurate information and raising awareness of the importance of this type of care. The initiative is aimed mainly at citizens, but also aims to stimulate institutions and the scientific community so that pediatric palliative care services are activated and strengthened throughout the country, guaranteeing affected children (and their families) the right to receive care near your place of residence.
Pediatric Palliative Care deals with a wide variety of incurable pathologiesmany of which are rare or without diagnosis, whose specific nature determines the type of care project for the individual patient and his family unit.
These are most often organ failures, degenerative diseases, genetic pathologies and severe cerebral palsy, the disability that develops as a result of brain and/or spinal cord damage. Oncological diseases represent 9% of children eligible for Pediatric Palliative Care and are those who access it most easily.
A multidimensional approach to the needs of the minor and his family alleviates suffering, pain and other symptoms, taking into account the psycho-emotional state and problems connected to the social, cultural and spiritual sphere, and conferring quality of life in the care path to sometimes very long, ranging from the diagnosis of incurability and irreversibility to the advanced and terminal stages of the disease. Pediatric Palliative Care, especially where there is early care of the minor and the family, allows one to improve the quality of life and find balance and stability in one’s daily life.
TO Reggio Emilia A hospital and local pediatric palliative care service is available, coordinated by the doctor Eleonora Balestri and the nurse Enrica Bianchi, which, by networking with the countless services and professionals that the complexity of the underlying pathology requires, is committed to responding to the ever-changing and changing socio-health, psychological and spiritual needs of the child with incurable illness and his family. To date the number of children and families taken care of by the CPP network of Reggio Emilia it has exceeded one hundred and is constantly increasingsimilarly to what happens at a national and international level.
Sunday’s event, which sees the patronage of the ASL IRCCS of Reggio Emilia, is free and aimed at the entire citizenry. In addition to an introductory debate, there will be games, readings and fun moments for children, information points and a photographic exhibition.
